Bohring-Opitz Syndrome Awareness Day2026 · Date · History
The Bohring-Opitz Syndrome Foundation states that the day takes place every 6 April, that Taylor Gurganus organized the first observance on 6 April 2015, and that the date marks the first BOS Support Group anniversary.
About Bohring-Opitz Syndrome Awareness Day
Bohring-Opitz Syndrome Awareness Day takes place on 6 April each year as an awareness campaign for people and families affected by Bohring-Opitz syndrome.
The Bohring-Opitz Syndrome Foundation says co-founder Taylor Gurganus organized the first awareness day on 6 April 2015.
Why Bohring-Opitz Syndrome Awareness Day matters
The day is intended to increase public understanding of a rare genetic syndrome and to support connection among affected families and caregivers.
Awareness information is educational and should not be used as a substitute for diagnosis, genetic counseling or individualized medical care.
History of Bohring-Opitz Syndrome Awareness Day
The BOS Foundation identifies 6 April 2015 as the first Bohring-Opitz Syndrome Awareness Day.
Taylor Gurganus, a co-founder of the Foundation, organized that first awareness day.
The date was selected because 6 April is the anniversary of the formation of the first BOS Support Group on Facebook.
The Foundation continues to present 6 April as the annual awareness date and provides participation resources for families and supporters.
How the observance developed
This timeline uses documented milestones from reviewed sources. Missing stages are left out rather than guessed.
Taylor Gurganus, co-founder of the Bohring-Opitz Syndrome Foundation
The BOS Foundation states that Gurganus organized the first BOS Awareness Day.
First documented observance
The Foundation explicitly states that the first BOS Awareness Day was organized on 6 April 2015.
Bohring-Opitz Syndrome Foundation
The Foundation maintains the annual Awareness Day information and participation resources.
What the evidence establishes
Confirmed institutional roles and milestones are shown first. Details that could not be established from the reviewed sources are listed separately below.
5 fields not established in reviewed sources
Also known as
Bohring-Opitz Syndrome Day
How to Observe Bohring-Opitz Syndrome Awareness Day
Use information from the BOS Foundation or qualified medical sources to learn about the syndrome.
Share verified awareness resources rather than unverified symptom lists or treatment claims.
Support affected families, patient organizations or research efforts in ways that fit your circumstances.
If you have personal medical or genetic questions, discuss them with an appropriate health professional.
Respect the privacy and individual experiences of people living with rare conditions.
Bohring-Opitz Syndrome Awareness Day Facts
Bohring-Opitz Syndrome Awareness Day is held on 6 April each year.
The BOS Foundation dates the first awareness day to 6 April 2015.
Taylor Gurganus organized the first event according to the Foundation.
The date was chosen to mark the anniversary of the first BOS Support Group on Facebook.
The campaign is an awareness initiative, not a medical guideline or diagnostic service.
Topic and context
What this page does not assume
- Keep the source-defined country, community, organizer or institutional scope; do not silently broaden it.
- Do not treat the title alone as proof of government recognition or public-holiday status.
- Do not add a creator, founding story or origin claim unless the supporting evidence establishes it.
- Health Information Not Medical Advice.
Evidence & sources
Sources used across the guide are gathered here. Labels show how each source supports the page, and contextual references are kept separate from primary evidence.
Bohring-Opitz Syndrome Foundation (opens in a new tab)
Bohring-Opitz Syndrome Foundation — Awareness Day (opens in a new tab)
First Party Health Charity
Bohring-Opitz Syndrome Foundation — Services / Awareness Day (opens in a new tab)
First Party Health Charity
Understand it, compare it, then explore further
Start with the most common factual questions, then compare closely related observances and explore useful connections.
Frequently asked questions
When is Bohring-Opitz Syndrome Awareness Day?
6 April each year The documented recurrence rule is: 6 April.
Does Bohring-Opitz Syndrome Awareness Day fall on the same date every year?
Yes. It uses a fixed annual date unless stronger evidence changes the pattern.
Is Bohring-Opitz Syndrome Awareness Day an official public holiday?
The reviewed sources verify it within this scope: International / Bohring-Opitz Syndrome Foundation awareness campaign. That recognition does not by itself make it a statutory public holiday; the site only makes public-holiday claims when reliable evidence explicitly does so.
Who established or recognizes Bohring-Opitz Syndrome Awareness Day?
The documented basis is: The Bohring-Opitz Syndrome Foundation states that the day takes place every 6 April, that Taylor Gurganus organized the first observance on 6 April 2015, and that the date marks the first BOS Support Group anniversary.. Supporting evidence includes Bohring-Opitz Syndrome Foundation — Awareness Day. The site does not infer a separate creator or founder unless reviewed evidence establishes one.
Is Bohring-Opitz Syndrome Awareness Day international or country-specific?
The documented scope is international or global: International / Bohring-Opitz Syndrome Foundation awareness campaign. That does not mean every country treats the date as a public holiday or observes it in the same way.
How is this page verified?
The factual information is checked against reviewed sources, including the date pattern, scope and institutional history. This page was checked on 2026-10-01.
When is Bohring-Opitz Syndrome Awareness Day?
It is held each year on 6 April.
Who started the awareness day?
The Bohring-Opitz Syndrome Foundation says co-founder Taylor Gurganus organized the first awareness day in 2015.
Why was 6 April chosen?
The Foundation says it marks the anniversary of the formation of the first BOS Support Group on Facebook.
Is the awareness page medical advice?
No. Awareness information can help people learn, but diagnosis and medical decisions should come from qualified health professionals.
Other observances on April 6
These observances are also listed on April 6, 2027.
California Poppy Day
California Department of Education cites Education Code section 37222.12, which designates April 6 of each year as California Poppy Day.
Drowsy Driver Awareness Day
California Senate Concurrent Resolution 27 proclaimed April 6, 2005 as Drowsy Driver Awareness Day and designated April 6 of every following year as the state’s memorial observance.
International Day of Sport for Development and Peace
A/RES/67/296
National Food Faces Day
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National Student-Athlete Day
The NCAA marks National Student-Athlete Day on April 6 and uses the observance to recognize student-athlete accomplishments in academics, well-being and community service.